Parents guide
Children & brain injury: an introduction
One of the most important
differences between children and adults who acquire a brain injury
is that a child's brain is still developing.
After a brain injury, rehabilitation for adults primarily
focuses on helping them to relearn lost skills. However, in many
cases a child has not learned many of the skills an adult takes for
granted, so extra support is needed to ensure a child's development
occurs as normally as possible.
Predicting the degree of
recovery
Predicting how much recovery will occur after a brain injury is
always difficult, regardless of the cause - brain tumour,
meningitis, encephalitis or traumatic brain injury. it becomes even
more so for children as specific problems may only become apparent
at certain stages of development. It is important to provide plenty
of support to prevent the child lagging behind their peers in key
areas.
Professionals used to think that younger children made a greater
recovery due to neural plasticity - the ability of the developing
brain to reorganize itself. Unfortunately this has been disproved
and research suggests children are more vulnerable to a brain
injury and will take longer to recover.
In general, it appears that the earlier a brain injury occurs, the
more impact it will have for the child. Recovery appears to be an
easier process when basic functional skills have already been
developed. However, a child's age only has a limited impact on
recovery, and the key factors are still the severity and type of
brain injury, how supportive the family is, and rehabilitation and
support at school.
Effects of a brain injury
Sensory & motor skills: a child may either
lose some previously acquired skills or may have difficulty
learning new skills e.g. holding a pen, drawing, using a keyboard,
constructing and manipulating objects, using cutlery, getting
dressed, recognizing objects and a variety of other eye-hand
coordination activities. Other problems may be balance,
coordination or swallowing and speech difficulties. Professionals
such as physiotherapists, occupational therapists and speech
pathologists play an important role in the assessment and
rehabilitation of sensory and motor disorders.
Cognitive abilities: a brain injury may lead to
a general decline in a number of intellectual abilities. However,
similar to adults, a child may be within the normal range on
measures of intellectual functioning and yet display significant
problems in specific areas of attention, memory, language,
visuo-spatial and executive functioning.
Language & communication: many children
experience receptive problems which involve difficulty processing
different parts of spoken or written information. Comprehension
problems occur when a child cannot understand what he or she is
reading or what another person is saying. Spoken or written
language expression may be affected in terms of pronunciation,
fluency, grammar, intelligibility or meaning and retrieval of
words.
Social, behavioural & emotional issues: a
child can experience difficulties relating to peers and siblings
and have difficulty joining group activities. They can demand a lot
of attention from parents or teachers, and have difficulty
following rules and instructions. Behavioural problems include
depressed or anxious mood, hyperactivity, distractibility,
impulsivity, poor judgment, reduced control of anger and
frustration, mood swings, aggression, sleep disturbance, and poor
motivation. There are various rehabilitation strategies to assist
with these issues, the earlier the better.
Brain injury & your child's
development
A brain injury can disrupt normal development in terms language
and speech, learning, memory, behaviour, movement, balance and
coordination. Children with a brain injury can often still make
good progress, even if it is limited to some extent by the injury.
Support and assistance tailored to each child's needs will
definitely ensure they develop as to their fullest ability. This is
especially true at school, where this often a tendency to
underestimate the degree of support needed within the education
system.
Balancing risk & independence
One of the important things parents do is to help young people
learn to manage and judge risk. It is important to encourage
independence and allow a manageable element of risk, but a child's
brain injury can cause problems with anticipating danger, judging
risk, or showing self-control.
Research has shown that some of the most important factors that
protect young people from getting involved in some of the riskier
activities of adolescence are a strong and caring family and
school, and a sense of connection to family and school, coupled
with personal skills that enable the young person to develop
self-esteem and confidence. Other things that help are a stable
family structure, open lines of communication, a pro-active
approach to solving problems, and having a good relationship with
an adult outside the family-someone who believes in the young
person.
Challenging behaviours
Challenging behaviours are a normal part of growing up as
children test the boundaries, but these can be complicated by a
brain injury but the fundamentals for responding appropriately are
still largely the same. The best basis for helping your child is a
loving, caring relationship, so try to see your child as separate
from the behaviour - 'I love you, but I don't like what you're
doing'.
Set specific rules and structures for particular situations, and
rehearse these each time a similar situation is coming up.
Structure and routine become even more important after a brain
injury. Praise or reward behaviours you want to encourage but don't
reward behaviours you don't want to see.
Help your child to learn from experience by talking over what he
or she did right or wrong, and how there might be other ways of
responding. Show your child, by your actions, how to handle
difficulties and get along with others. Most importantly, young
people with a traumatic brain injury or other type of brain
disorder may need very concrete, detailed and explicit instructions
and rules about what to do in particular situations. See our
detailed facts about challenging behaviours for more
information.